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9-year-old Shawnee boy fighting rare form of prostate cancer

SHAWNEE, Okla. – A 9-year-old Shawnee boy is battling a devastating disease that is relatively unheard of at such a young age.

Just a month ago, Trevor Storie told his parents he had a stomach ache.

They gave him medicine but nothing seemed to make him feel better.

They soon realized he was having trouble going to the bathroom.

After multiple trips to different doctors, they discovered that he was battling something much worse than the common cold.

Trevor was diagnosed with stage three prostate cancer.

Zona Storie, Trevor’s mom, asks, “What kind of cancer do you have?”

Trevor says, “Rhabdomyosarcoma!”

Rhabdomyosarcoma is a mouthful for a 9-year-old.

“It’s not normally in prostate,” says Zona Storie. “And it’s definitely not usually in 9-year-old boys.”

While the disease is a lot more common in older men, Trevor says his rare cancer has made him famous.

“Everybody knows us. Let’s put it that way,” says Zona Storie. “He’s the kid with prostate cancer because it must be that rare.”

The laughter masks the 42 weeks worth of poking, prodding and intense chemotherapy treatments ahead of them.

“There’s no football, there’s no baseball, there’s no dirt bikes, there’s no trampolines,” says Zona Storie. “All there is, is just trips to the doctor.”

In the meantime, Trevor’s mom and dad say they’ll do everything they can to make him feel as normal as possible, which included shaving their own heads.

Zona Storie asks, “How come daddy did that?”

Trevor says, “Because he loves me.”

The Storie family knows how to fight.

Both of Trevor’s parents lost their mothers to cancer.

However, his doctors have told them the outcome for Trevor will be different, promising a full recovery.

“We just wanted to know he was going to be okay,” says Zona Storie. “We already lost two, we didn’t want to lose another one.”

With medical bills expected to be outrageous, the family says they could use all the help they can get financially.

Fundraising efforts that are in the works include selling t-shirts and wristbands, sports tournaments, fundraisers at metro restaurants and auctions.

For more information, head to the family’s Facebook page.