PHILADELPHIA, Pa. – A Philadelphia woman was nearly 3 months pregnant when she found out her unborn son had a terminal brain defect.
A devastating diagnosis has proven to a Philadelphia couple that “each day must be lived to the fullest.”
According to WJW, Jenna Haley was just 13 weeks pregnant when doctors told her that her son had anencephaly, which is a terminal brain defect. The life expectancy of babies with the condition ranges from hours to days.
After hearing the diagnosis, Jenna and her husband, Don, put together a bucket list, taking Shane on lots of adventures while he’s still growing inside his mother.
They post their adventures and photos to their Facebook page, Prayers for Shane. The page has earned more than 260,000 followers.
Their adventures have taken them to the beach, museums, the Empire State Building, and Phillies games.
“We are asking for your prayers and support and that God grants us as much time as possible with our beautiful son,” they write on the Facebook page. “Shane has already proven to us that each day must be lived to the fullest and that is exactly what our little family is doing.”
Shane is due on Oct. 12.