HENRICO COUNTY, Va. - Elsa Prather was diagnosed with Dravet Syndrome when she was just five months old.
Dravet Syndrome is a rare form of epilepsy that caused Elsa to have massive and frequent seizures.
Despite the diagnosis, Elsa was a beautiful and loving child.
"She was the sweetest, most perfect, loving child," said Erin Gray, Elsa's aunt.
"Her smile lit up a room," said Lindsay Hannan, Elsa's aunt. "She was very, very special."
Her family says she was able to manage the epilepsy until about three months ago.
For 95 days, Graham and Alissa Prather watched as doctors tried every treatment to save their little girl.
On Wednesday, doctors told them that she was brain-dead.
Elsa was just 22-months-old.
The Prathers spend Saturday night sleeping next to their daughter before she was taken off life support.
While dealing with the devastating loss, the couple received another blow from family members.
They were told that their home had been broken into and ransacked by burglars.
"I looked at the back window near the stairs and it was open and you could see there was a knife slit in the screen," said Hannan. "I turned around to look and the TVs were gone and it just hit me like a ton of bricks."
The family says furniture was turned upside down and the contents of drawers were spilled onto the floor.
Hannan says the thieves may have taken money and jewelry as well.
"It was going to be hard enough for them to come back to this house," said Gray. "The backstory of what we were going through already, it's just unbelievable."
Amazingly, Elsa's room was untouched.
However, Alissa and Graham have decided not to return to their rented home.
The Prathers donated Elsa's kidneys, liver cells and heart valves. Her brain was also donated to Harvard for research into Dravet Syndrome.
"They wanted Elsa to be able to help as many people as she could," said Gray.
The family also started an organization called Elsa's Bows and Band-Aids. They are collecting fun bandages and bright bows for children in the pediatric unit at St. Mary's Hospital.
As for the thieves, Alissa Prather says there is no material possession that she cares about losing now.