LINCOLN, Cali.– A baby girl in California is suffering with a rare skin condition that makes her nearly untouchable.
“This is the worst disease you’ve never heard of,” her mother, Kirsti Kinkle, told NBC station KCRA. “A clothing tag or rough fabric, or even me picking her up under her arm can cause blisters… There is no skin-to-skin contact.”
The Kinkles even have to wrap a soft blanket around their 2-month-old before they pick her up.
Kiira’s parents spend two hours every day individually wrapping her fingers and toes before they completely cover her hands and feet to protect her from hurting herself.
“I can’t hold her hand because it’s constantly bandaged.”
According to NBC, they are meeting with experts at Stanford University’s children’s hospital on Friday to talk about the latest research.
“There is no cure,” Kirsti Kinkle told KCRA. “Everything right now is just a treatment to improve conditions but not get rid of it.”