Edmond baby boy fighting rare cancer-like disease

Kids with Courage
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EDMOND, Okla. - Baby Karston loves to play.

He is curious like most nine-month-old babies.

But as soon as he was born last year, his parents Sarah and Kyle noticed something troubling.

Karston had unexplained spots all over his tiny body.

"Some of them were open. Some of them just looked like blisters," Karston's father Kyle said.

Baby Karston
Baby Karston

Karston was examined by several pediatricians, but still no answers.

The family was sent to a dermatologist hoping the spots would clear up after a couple of weeks, but they became worse.

Then tests confirmed a parent's worst fear.

"The nurse called and told us it was this Langerhans Cell Histiocytosis," Kyle said.

Langerhans Cell Histiocytosis, or LCH, is an extremely rare, cancer-like condition caused when the body makes too many of a specific type of white blood cell that normally fights infection.

"They grow out of control only they're not cancer cells, they're normal cells," Dr. Charles Sexauer, Karston's doctor at Jimmy Everest Center, said. "That differs from cancer."

Dr. Sexauer and a team of specialists at Jimmy Everest knew they would need to take a different approach to curing Karston's disease.

A fight baby Karston continues to courageously fight every day.

"It's hard, especially when you don't really know and he seemed so little," Kyle said with tears in his eyes.

Find out more about Karston's treatment, and the cutting edge step specialists at Jimmy Everest have already taken to increase the baby's odds.

Join Marianne Rafferty Tuesday at 5 p.m. for "Kids with Courage."

Sponsored by Jimmy Everest Center.

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