OKLAHOMA CITY - Kamryn can only play in her playhouse during certain times of the year.
A drastic change in temperature could shock her system into a sickle-cell crisis.
"Sharp pains and sometimes achy and squeezing and....just a lot of pain," Kamryn Dukes said.
This 9-year-old girl was diagnosed with sickle-cell disease when she was just two-weeks-old.
It's a debilitating blood disease that keeps her from doing normal activities.
"There's been times when her whole body, she couldn't move. She couldn't walk two years in a row for like three months,"Cameron Dukes, Kamryn's father, said.
Just last year, she spent 50 days in the hospital and missed more than two months of school. Still, she managed to make straight A's.
"People don't see that side. They see a smiling little girl and then, every day, she just goes through so much that the normal person would never know," Cameron said.
Sickle cell is a hereditary disease that can cause strokes, blindness and, in some cases, death.
The disease mutates blood cells, making it difficult for them to pass through blood vessels. It causes intense pain, described by some patients as similar to getting your hand slammed in a car door.
However, that pain never goes away.
Kamryn relies on blood transfusions four times a year just so she can have energy to get through the day.
"Makes me feel healthier, and I can run around and play," Kamryn said.
Now, she's looking for a bone marrow match to cure her completely. She's been on the waiting list for two years. Her family hopes more people will get tested to see if they could be a match.
"She's just a strong little girl who just continues to fight," Cameron said.
Her dream is to become a music star and use her fame to spread awareness about sickle-cell.
Kamryn says blood donors are continuously saving her life. If you'd like to be a donor and save a life, make sure you head out to one of the Oklahoma Blood Institute blood drives on Saturday at three Bob Moore locations.
Bob Moore Cadillac, west side of Broadway Extension, south of Memorial Rd.
Bob Moore Chrysler Dodge Jeep Ram of OKC, Northwest Expressway, west of Rockwell Ave.
Bob Moore Ford, I-35 and Southeast 89 St.
The drive will be from 8 a.m. to 5 p.m. and one donor will be given a chance to win a new KIA Soul.
Each donor will also receive a voucher good for two tickets to the Oklahoma City Zoo and a t-shirt.
For more information, or to schedule an appointment to donate, call 1-877-340-8777.