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LOS ANGELES, Cali.–An 8-year-old California boy wrote a book that has raised $800,000 towards curing the cause of his best friend’s suffering.
The book was written for Jonah, a little boy who suffers from a rare form of glycogen storage disease (GSD), a genetic condition that throws his blood sugar out of balance.
It’s a serious, potentially fatal disorder that demands 24/7 care and attention — but you’d never know it if you met the rambunctious kid with a goofy sense of humor and a sweet smile.
When the story was first covered, the book had made profits of up to $200,000. With the jump up to $800,000, Dylan’s goal of $1 million has almost been reached.
“I asked him what he was gonna do after we hit a million dollars,” Debra Siegel, Dylan’s mother, told NBC News.” And he said, ‘Well, we’re gonna keep going ’til Jonah’s better.’ And that’s how we all feel.”
It has been reported that the money is funding research at the University of Florida led by Dr. David Weinstein, who says a cure for the disease is on the horizon. And Jonah’s parents pick up the cost of printing and shipping so every cent benefits the lab in Florida.
Since the story was first covered in 2013, many people have asked how they can help support the Jonah Fund. If you’d like to follow up, you can donate through Amazon.